What Now...
Today is Sunday. I was discharged from JHC on Friday afternoon. this is the summary of what happened in the past few days:
Wednesday, the consultant who visit me mentioned that he will ask Dr Richard Shelley to come and see me again because he is the one who saw me last time in September. I have made it clear to the nurses that I prefer to go as a private patient and choose my own doctor because I find Dr Shelly not being useful.
he has cost me and my family almost 10000$ last time just because of him being unable to recognize my amnesia when it happened on the 12th of September, so he ignored everything my partner tried to explain to him and told my partner that I am faking my black outs and he discharged me without giving any clear advise on how to deal with someone whose constantly faints and does not remember her own partner or friends and any recent event ( on the 12th of September, I couldn't even remember why I am admitted in hospital and I was thinking I am there because of gull bladder pain, something that happened 4 years earlier). after being discharged, my partner flew me back to Iran trying to get a more adequate medical care there, of course everything was private cost and out of pocket plus the very expensive flights.
This is going to be a long post by itself so let's come back to the present, they have moved me from MAU to general medical ward and no one could tell me what is the medical plan to help me. we had booked a sleep study privately (asked by my Psychiatrist) which my friends got the tools and brought them to hospital and I have done the study on Wednesday night, the results are going to be ready next Monday.
after lots and lots of waiting and asking and inquiring, another medical doctor and his team came to see me on Thursday afternoon.
I was constantly asking to admit me as a private patient so I can use the benefit of asking for a specialist to visit me, even thought a HBF representative came to visit me but they did not transfer me to a private ward and everyone kept telling me that it won't make any difference to become a private patient.
to be honest, I think because I don't have any excess on my cover there may be a silence agreement between insurer and hospital to deter patients to go private to save the insurers cost. even thought both myself and my partner asked several times to admit me as a private patient they still ignored our request, gave me a single room in general ward for the last two days but didn't transfer me to private.
which means at the end, I could not ask for any specialist, neither neurologist nor psychiatrist to come and see me, the general doctor was as confused as Dr Richard Shelley who saw me the last time however this one, Dr Warwick Howe was at least polite, listened to me and agreed to ask neurology team to come and visit me. he had the dignity to admit that he has no idea what's wrong with me which was the first honest response I've got in this hospital so far.
Dr Howe said because Dr Julian Rodrigues saw me last time, so they will ask him to see me again. Friday morning, I woke up around 4:30 am finding myself sitting on the wheelchair next to my bed. again I have no idea how or why I am there so moved myself back to the bed but it again makes me worried like hell.
the nurses can't help me and no one knows if any doctor is planning to come and see me, it is Friday and I know if I don't see a doctor today, they all will go away until Monday and it is scary knowing that I can't walk on my left leg, I have seizures, I do faint and also somehow sleep walk without remembering. with all that symptoms, still the doctors say nothing is wrong with me or better said they are not capable of giving me a diagnosis.
anyway, my partner came around 11 am and we went to Dr Angeline Chester private office (she is the psychiatrist whom I saw once but referred me back to GP for more medical tests and seeing neurologist).
she was fully booked but still spent 20 minutes with us talking and also called Dr Howe and had a chat with him. Finally she said that she's happy with Dr Howe saying it's not medical issue and she is willing to accept the Iranian doctors diagnosis for conversion disorder (functional Neurological disorder) and dis-associative amnesia/fugue. so she said we don't have to wait for neurology team to see me and if Dr Howe agrees I can go home, however after hearing Reza's concerns about me running off the home, he said (Dr Howe) I can stay in medical ward until Neurology sees me but he is 100% positive that they still will refer me to Psychiatrist.
Dr Chester explained that all my symptoms can be explained by anxiety and it is just a rare manifestation of a very common illness and easily treatable once they know and are sure that it is not medical.
I guess that gives us some relief and we agreed to follow their advise, booked an appointment with Dr Chester for next Tuesday morning and Dr Howe's assistant has organised my discharge.
she prescribed me with Diazepam 5mg so I can sleep at night and help to relax my mind until Tuesday when she will see me to come up with a treatment plan.
I am going to create a few posts to log my Fainting episodes, memory losses and also sleep walking's and wait to see what these doctors will do.
Wednesday, the consultant who visit me mentioned that he will ask Dr Richard Shelley to come and see me again because he is the one who saw me last time in September. I have made it clear to the nurses that I prefer to go as a private patient and choose my own doctor because I find Dr Shelly not being useful.
he has cost me and my family almost 10000$ last time just because of him being unable to recognize my amnesia when it happened on the 12th of September, so he ignored everything my partner tried to explain to him and told my partner that I am faking my black outs and he discharged me without giving any clear advise on how to deal with someone whose constantly faints and does not remember her own partner or friends and any recent event ( on the 12th of September, I couldn't even remember why I am admitted in hospital and I was thinking I am there because of gull bladder pain, something that happened 4 years earlier). after being discharged, my partner flew me back to Iran trying to get a more adequate medical care there, of course everything was private cost and out of pocket plus the very expensive flights.
This is going to be a long post by itself so let's come back to the present, they have moved me from MAU to general medical ward and no one could tell me what is the medical plan to help me. we had booked a sleep study privately (asked by my Psychiatrist) which my friends got the tools and brought them to hospital and I have done the study on Wednesday night, the results are going to be ready next Monday.
after lots and lots of waiting and asking and inquiring, another medical doctor and his team came to see me on Thursday afternoon.
I was constantly asking to admit me as a private patient so I can use the benefit of asking for a specialist to visit me, even thought a HBF representative came to visit me but they did not transfer me to a private ward and everyone kept telling me that it won't make any difference to become a private patient.
to be honest, I think because I don't have any excess on my cover there may be a silence agreement between insurer and hospital to deter patients to go private to save the insurers cost. even thought both myself and my partner asked several times to admit me as a private patient they still ignored our request, gave me a single room in general ward for the last two days but didn't transfer me to private.
which means at the end, I could not ask for any specialist, neither neurologist nor psychiatrist to come and see me, the general doctor was as confused as Dr Richard Shelley who saw me the last time however this one, Dr Warwick Howe was at least polite, listened to me and agreed to ask neurology team to come and visit me. he had the dignity to admit that he has no idea what's wrong with me which was the first honest response I've got in this hospital so far.
Dr Howe said because Dr Julian Rodrigues saw me last time, so they will ask him to see me again. Friday morning, I woke up around 4:30 am finding myself sitting on the wheelchair next to my bed. again I have no idea how or why I am there so moved myself back to the bed but it again makes me worried like hell.
the nurses can't help me and no one knows if any doctor is planning to come and see me, it is Friday and I know if I don't see a doctor today, they all will go away until Monday and it is scary knowing that I can't walk on my left leg, I have seizures, I do faint and also somehow sleep walk without remembering. with all that symptoms, still the doctors say nothing is wrong with me or better said they are not capable of giving me a diagnosis.
anyway, my partner came around 11 am and we went to Dr Angeline Chester private office (she is the psychiatrist whom I saw once but referred me back to GP for more medical tests and seeing neurologist).
she was fully booked but still spent 20 minutes with us talking and also called Dr Howe and had a chat with him. Finally she said that she's happy with Dr Howe saying it's not medical issue and she is willing to accept the Iranian doctors diagnosis for conversion disorder (functional Neurological disorder) and dis-associative amnesia/fugue. so she said we don't have to wait for neurology team to see me and if Dr Howe agrees I can go home, however after hearing Reza's concerns about me running off the home, he said (Dr Howe) I can stay in medical ward until Neurology sees me but he is 100% positive that they still will refer me to Psychiatrist.
Dr Chester explained that all my symptoms can be explained by anxiety and it is just a rare manifestation of a very common illness and easily treatable once they know and are sure that it is not medical.
I guess that gives us some relief and we agreed to follow their advise, booked an appointment with Dr Chester for next Tuesday morning and Dr Howe's assistant has organised my discharge.
she prescribed me with Diazepam 5mg so I can sleep at night and help to relax my mind until Tuesday when she will see me to come up with a treatment plan.
I am going to create a few posts to log my Fainting episodes, memory losses and also sleep walking's and wait to see what these doctors will do.
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