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Showing posts from 2016

Medical Log

04/09/2016 faint with hitting my head on floor, Ambulance transferred me to JHC 05/09/2016 CT SCAN in JHC 05/09/2016 - 11/09/2016 Long term heart monitoring several episodes of black out, mostly during arvo/evening ours 11/09/2016 another hit on the head while going to the toilet huge sensitivity to light seizure (more body and limbs shaking) left hand and leg weakness 12/09/2016 heart ECO confusion and memory gap thinking that it's 2012 and unable to remember why I'm in the hospital Discharged from JHC without any diagnosis 13/09/2016 fly from Perth to Iran to visit the old Neurologist another seizure in the plane and few blackout episodes on take on and take off times 14/09/2016 Neurologist appointment referral to another Neurologist  15/09/2016 referral to LTM test 19/09/2016 LTM in Razavi hospital 20/09/2016 - 01/10/2016 psychiatric evaluation diagnosed with Conversion disorder, dissociative fudge, dissociative amne...

Amnesia / Fugue Log

12/9/2016 woke up in JHC hospital and couldn't remember why I am there. imagined to myself that it is year 2012 when I was actually admitted there for gull bladder pain. the past 4 years memory were all missing, could't remember my new friends, didn't recognize my new work place or colleagues, didn't remember about Reza's divorce and our partnership. didn't even remember my own home. Dr in hospital thought I am faking it all, he discharged me without offering any help. Reza brought me home around 10 PM (didn't recognize my own home or flatmates either), and he got a flight to Iran 7 am the next morning. had another full seizure in the plain and after sleeping and waking up in Iran, the memory was back to normal however I didn't remember the past 24 hours from 12th to 14th. Some of those gaps came back when similar scene or conversation happened or someone mentioned something funny that happened the the gap state. The night before I had a fa...

Fainting Log

Black outs (fainting) log 02/11/2016 20:00 on the wheelchair, 5 sec 04/11/2016 8:30 standing up from bed to wheelchair, 2 sec 06/11/2016 14:20 on the wheelchair, 5 second

What Now...

Today is Sunday. I was discharged from JHC on Friday afternoon. this is the summary of what happened in the past few days: Wednesday, the consultant who visit me mentioned that he will ask Dr Richard Shelley to come and see me again because he is the one who saw me last time in September. I have made it clear to the nurses that I prefer to go as a private patient and choose my own doctor because I find Dr Shelly not being useful. he has cost me and my family almost 10000$ last time just because of him being unable to recognize my amnesia when it happened on the 12th of September, so he ignored everything my partner tried to explain to him and told my partner that I am faking my black outs and he discharged me without giving any clear advise on how to deal with someone whose constantly faints and does not remember her own partner or friends and any recent event ( on the 12th of September, I couldn't even remember why I am admitted in hospital and I was thinking I am there beca...

Hospital again

Well I ended up in Joondalup hospital again, waiting in the MAU to be decided whether I should go neurology or psychiatry.  Some strangers found me on the side of a road in Butler yesterday, I have no idea how I've got there or why would I leave home in the first place. Can't remember anything from yesterday nor a thing from all Monday. Last I remember is coming back from our short trip to denmark (which was Sunday night) Strangers tried to wake me up and I had a seizure which they called the ambulance and I was brought in to JHC.  I was in ER all day and moved to MAU around 8pm, a doctor visit me 1am and discussed all my symptoms about 2 hours.  Now in the morning another doctor came in and said he will not help me because I was under doctor Shelly's team before so they are going to pass me to the same team.  It's the same horrifying cycle again, a doctor who had me admitted me for 8 days and discharged me in a worth condition that I came in is going to give me another...

This is the story of my illness

I have become sick again and this time decided to write my story, for few different reasons. First, I keep forget the details and it's good to have them down, Second, My psychologist wants me to write everything in a notebook, I'm not a paper person so blogging it here is my choice. It all started mid August when I started short episodes of black outs, once a week at first and then increased to once/twice a day. most episodes happened at night, until September 2nd when it happened during the day while I was in office, so I left early and then on the following Sunday I had a fall and hit my head on the floor. Friends called an Ambulance and paramedics rushed me to Joondalup Health Campus hospital. following that the doctors kept me in GM sections 8 days, monitoring my heart and also done a CT Scan and one EEG, apparently all normal. I had several blackouts during my stay, and on my last day there, following another episode of fall, woke up thinking the date is three years...